Welcome to our story...
Living life with our
special needs son
Join us as I share our experiences and stories with our son
who was diagnosed with Bohring-Opitz Syndrome
What to Except
Insight to Brantley's
Condition
Brantley was diagnosed with Bohring-Opitz Syndrome just before his first birthday in 2020. Leading up to this and the months to follow come with a lot of learning, accepting, and challenging moments.
Navigation through the Medical World
The medical world can seem scary at times, especially when there so many unknowns for your child's medical needs. From the doctors to the lengthy terms, there was a lot to digest and learn.
Listening and Advocating for Your Child
Your child is always talking to you, even if they can't verbally speak to you. Listen to them, stand up for them. They will give you more insight than any professional can.
“Brantley will define Brantley, not Bohring-Opitz Syndrome.”
Melissa Brown (Mother)
ABOUT US
We're the Brown Family and this is our story.
Please know this is our story that we want to share about Brantley’s journey. These stories and experiences are personal to him. As you follow along, just because he encounters certain challenges, your child or family member may not encounter the same challenges. The information provided is from personal experiences and not medical advice. As much I think I could be qualified to be a professional by now, none of this should be used as medical advice. Please always consult your medical team to formulate a medical plan for your child.
We would love to hear from you
Tell us your stories, experiences, or ask any questions you may have!!